Boy suffering from rare skin condition paints himself with ink to hide the white spots

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Boy suffering from rare skin condition paints himself with ink to hide the white spots

2017-09-29 12:18 Last Updated At：12:18

One year ago, a boy in Baoding City, Hebei Province, was infected with Vitiligo, a long-term skin condition characterized by patches of skin losing their pigment. In the hope of not worrying his parents, the young boy went to great lengths to cover the white patches on his skin with black ink. He mentioned what he did in his school essay, “I want daddy to sweat less, and mommy to shed fewer tears” he said. The incident has caused concern among internet users in mainland China, and the schoolboy was dubbed “the boy in ink”. The boy’s parents have taken him to a hospital in Beijing, which has granted him a subsidy related to treatment.

Jiang Le, a grade 4 school kid, was diagnosed with Vitiligo a year ago. His cousin was the first to discover the ink stains on his wrist, and had thought he had the ink inadvertently spilled on him. Jiang refused to clean up and wash away the ink even when told to do so. It was only after reading his essay that the truth began to dawn on his cousin. Jiang wrote that after painting the white patches black, he was told off by his dad who said “You look scruffy and shabby!” Jiang also remarked, “Daddy works his socks off to pay for my medical treatment, daddy worked bloody hard for that money, he sweats profusely at his work site. All I wanted to do was to paint myself with ink, so that daddy can sweat less, and mommy can cry less.”

After reading her son’s essay, the distraught mom choked back tears and said “This is not what I expected … I feel absolutely gutted.” She added, Jiang is a cheerful child who loves talking, and he usually just speaks his mind in front of us, he “is not keen on crying, and never throws a tantrum”.

Jiang’s mom said, not long ago her husband had his arm cut by a broken glass, and is still staying at a hospital. It will be at least a year before her husband goes back to work, which means all sources of income are cut.

Jiang’s essay has been trending online, internet users were quick to praise Jiang’s maturity. Jiang’s mom has already brought her son to Beijing for further treatment. Doctor Pak has sought subsidies for him from the Children’s Fund and other related groups, to lessen their financial burden considerably.

Golfers follow the sun. Now they are paying closer attention how to protect themselves from it

2024-04-13 23:15 Last Updated At：23:20

AUGUSTA, Ga. (AP) — Camilo Villegas wasn't just trying to refine his golf swing as he prepared to play in the Masters for the first time in nine years.

He was constantly checking the fine print on the ingredients in sunscreen. It reached a point a few weeks ago when the 42-year-old Colombian was trying three brands — one for his face, another for his arms, a third for his legs during practice rounds when PGA Tour players can wear shorts.

Nothing is left to chance.

“The first one I realized was more of a cosmetic. It didn't really work as strong as I wanted,” Villegas said. “I'm trying a Korean brand now, and that has worked pretty good.”

Skin cancer has his attention — along with many of his fellow golfers.

There seems to be a renewed emphasis on sun protection. Golfers are more exposed to the sun for longer periods of time than players in any other sport. The weekday rounds last five hours. Throw in an hour of practice before the round, sometimes after, and it adds up quickly.

“The amount of time we spend in the sun, you've got to protect yourself,” Villegas said. “The sun is burning you.”

No need telling Stewart Cink. He was walking off the practice range at Innisbrook Resort in Palm Harbor, Florida, last month when he was asked why sun protection was important to him.

“Well, as someone whose maternal grandmother passed away from melanoma, and someone who's out in the sun a whole lot and someone who already had a big chunk of stuff cut off the side of my face,” he said, pausing to smile. “It very important, not to mention what my wife is going through with her (breast cancer) treatment. It would be dumb not to.”

The American Academy of Dermatology estimates one in five Americans will develop skin cancer. The non-melanoma variety, such as basal cell carcinoma and squamous cell carcinoma, affects 3 million Americans a year.

Sunscreen is just one form of protection.

Stephanie Kyriacou of Australia has always been conscious about the effects of the sun, but a turning point during her amateur days was meeting a woman at home Down Under who invited her to a factory in Queensland.

That was her introduction to Australia-based “SParms,” which makes sun protection sleeves that have become enormously popular on the LPGA Tour.

The sleeves are made of high-tech fabric with an ultraviolet protection factor (UPF) of at least 50, meaning it blocks 98% of the sun's ray. The sleeves can go up the arm and wrap around the shoulder blade.

“Like a lot of girls out here, I'm aware of my skin,” Kyriacou said. “Sunscreen on my face and SParms on my arms. And I like to wear pants unless it's boiling hot.”

Now there are some 60 players at any given tournament wearing sun sleeves.

Kyriacou estimates she's in the sun for at least seven or eight hours a day, and the 23-year-old Aussie has been playing since she was 4.

That's typical of most tour players. They have spent practically their entire lives in the sun, facing the ultraviolet rays that can cause so much damage.

Exposure to the sun’s ultraviolet light raises the risk of skin cancer, the most common and one of the most preventable types of cancer. The American Academy of Dermatology recommends using a sunscreen with a sun protection factor (SPF) of 30 or higher and one that is “broad spectrum,” meaning it protects against both UVA and UVB rays.

“I don't think I wore sunscreen ever,” Cink said. “You know, we use to wear suntan lotion or oil that would intensify the sun so you would get tan. I don't think I wore anything protective at least until I got on tour.”

It wasn't until he was 45 that Cink fully understood the danger. He had a basal cell carcinoma removed from the side of his nose in 2018. And now it's not just any sunscreen he uses.

“I am not a big fan of chemical sunscreen,” he said, referring to the more common brands. “I like the physical barriers, the zinc oxide and titanium dioxide. I look for something that has a high concentration of those two. You can find them if you search.”

Villegas found it on an app called Yuka, which deciphers product labels and analyzes the impact of food and cosmetics. That includes sunscreen.

“It's not perfect. You've got to do some analysis,” Villegas said. “But it gives you options. It's not like it takes you to a website to purchase something — that would make me skeptical. You compare products yourself and do the analysis.”

Skin cancer doesn't discriminate, so golfers of color also are seeking protection.

Xander Schauffele has darker skin, the son of a Taiwanese-born mother and a European father (French and German). He also uses the Yuka app and lately has been going with a product he calls Mr. Seaweed.

“It has less toxic stuff, I've been told by an app,” he said. “Sprays are bad. Cream is the best thing. I look up all that stuff.”

Justin Thomas, a two-time PGA champion whose father and grandfather were club professionals, said he has always used sunscreen, usually whatever is handy. Now he pays closer attention, and for good reason.

He said his legs and neck used to get hit pretty hard by the sun when he was practicing for long hours. He previously had five small moles removed as a teenager. But a tiny one on the back of his left leg concerned him in 2019 because of the odd color.

It turned out to be early stages of melanoma — the most dangerous form of skin cancer but curable if caught early — and he had surgery in which doctors cut down to the fat to make sure they got it all. The surgery left a scar across the back of his calf.

“I was 26 and my doctors are telling me I was months away from being a patient in the hospital,” Thomas said.

He wore sunscreen before. Now he is reading labels, paying particular attention to SPF and getting out the message that “you need to wear sunscreen and you need to get checked.”

AP Medical Writer Carla K. Johnson contributed to this report.

AP golf: https://apnews.com/hub/golf