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Mum who had a one-off sunbed course to avoid being a 'pasty bridesmaid' now has advanced skin cancer

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Mum who had a one-off sunbed course to avoid being a 'pasty bridesmaid' now has advanced skin cancer
News

News

Mum who had a one-off sunbed course to avoid being a 'pasty bridesmaid' now has advanced skin cancer

2018-08-16 15:09 Last Updated At:16:32

Keen for others to learn from her tragedy, Sarah Brookes is now calling for sunbeds to be banned.

A mum-of-two who had a course of sunbeds as a “one-off” to avoid being a “pasty-faced bridesmaid” has revealed how she now has stage four advanced skin cancer.

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Sarah as a bridesmaid (PA Real Life/Collect)

Keen for others to learn from her tragedy, Sarah Brookes is now calling for sunbeds to be banned.

The spot behind Sarah's ear (PA Real Life/Collect)

“I know I could have refused, but it was about five or six years ago and back then, I’d no idea just how dangerous sunbeds could be. Plus because of a number of allergies to different chemicals I have I didn’t want to have a spray tan in case I flared up.

Sarah during radiotherapy (PA Real Life/Collect)

“His exact words were, ‘Mum, that’s minging,’” she said. “We drove straight to the pharmacy, where they said I had an infected spot.

Sarah after her neck surgery (PA Real Life/Collect)

At the start of September 2016, when she went in for her appointment, she was wheeled straight down to theatre to have a mass behind her ear removed and sent off for testing.

Sarah and Morgan (PA Real Life/Collect)

“Bizarrely, I remember wondering if I’d still be able to wear earrings. It’s funny the things you think. But I knew that, no matter how it looked afterwards, I had to go ahead with the operation. It was either save my ear or save my life.”

Sarah and her family (PA Real Life/Collect)

Worryingly, they revealed the disease had spread to some lymph nodes in her neck.

Always vigilant about sun safety, Sarah Brookes, 41, of Bradford, West Yorkshire, said when she watched her boys, Morgan, 15, and Mason, 12, out playing, she would slather them with sun cream.

But when the progress support leader – similar to a supply teacher – and mentor for young carers was asked to be a bridesmaid for a friend she does not wish to name, and the bride suggested everyone should have a course of sunbeds to give them a golden glow in the photos of her big day, she agreed.

Married to Autoglass worker Darren, 43, Sarah, who is now campaigning alongside charity Melanoma UK to ban the commercial use of sunbeds, said: “I’d actually always been happy with my pale skin, but I agreed as I didn’t want to upset the bride, who didn’t want pasty-faced bridesmaids.

Sarah as a bridesmaid (PA Real Life/Collect)

Sarah as a bridesmaid (PA Real Life/Collect)

“I know I could have refused, but it was about five or six years ago and back then, I’d no idea just how dangerous sunbeds could be. Plus because of a number of allergies to different chemicals I have I didn’t want to have a spray tan in case I flared up.

“I’ve never been a sun worshipper – my parents used to jokingly call me a vampire. Doctors cannot say what caused this, but in my mind, if I hadn’t gone on those sunbeds, I wouldn’t be in this position now.”

Following her 10 three-minute sessions, Sarah forgot all about her sunbed treatments until one day in 2016 when, out-of-the-blue, she was driving along with Morgan when he noticed that the back of her ear was bleeding.

The spot behind Sarah's ear (PA Real Life/Collect)

The spot behind Sarah's ear (PA Real Life/Collect)

“His exact words were, ‘Mum, that’s minging,’” she said. “We drove straight to the pharmacy, where they said I had an infected spot.

“I was told to keep an eye on it and go straight to the doctor if it got hot. But it didn’t, so I forgot all about it.”

After that Sarah forgot about the spot again until later that year, when her mum Susan Burness, 68, pointed it out.

This time, however, when she consulted her doctor, she was urgently referred to a dermatologist at St Luke’s Hospital in Bradford.

Sarah during radiotherapy (PA Real Life/Collect)

Sarah during radiotherapy (PA Real Life/Collect)

At the start of September 2016, when she went in for her appointment, she was wheeled straight down to theatre to have a mass behind her ear removed and sent off for testing.

Two weeks later, the results revealed that, tragically, she had stage three malignant melanoma – a type of skin cancer.

“I just remember sitting there reeling, waiting for a cancer nurse to come and tell me what would happen next,” she said. “They told me they’d need to remove part of my ear to check the cancer margins.

Sarah after her neck surgery (PA Real Life/Collect)

Sarah after her neck surgery (PA Real Life/Collect)

“Bizarrely, I remember wondering if I’d still be able to wear earrings. It’s funny the things you think. But I knew that, no matter how it looked afterwards, I had to go ahead with the operation. It was either save my ear or save my life.”

Three weeks later, in October 2016, Sarah went under the knife, also having reconstructive surgery.

She continued: “It almost looks like a jigsaw. They stitched it all together, so it’s ear shaped, but just a lot smaller. I call it my mini ear.”

During the operation, doctors – who are unable to confirm what has caused her cancer – also injected Sarah with a radioactive dye, designed to highlight any further cancer traces evident in her body.

Sarah and Morgan (PA Real Life/Collect)

Sarah and Morgan (PA Real Life/Collect)

Worryingly, they revealed the disease had spread to some lymph nodes in her neck.

Once they were removed and sent away for testing, though, a CT scan seemed to show she was in the clear.

“I was practically dancing after that,” recalled Sarah. “I thought that was it. It was over.”

But, around eight weeks later, in December 2016, the lymph node results came back, showing they contained malignant cancer cells.

So, in January 2017, Sarah had an operation known as a neck dissection, where doctors make an incision from the chin to the neck, then up towards the ear.

She continued: “That was absolutely horrendous. I looked like Frankenstein’s monster, all swollen up and covered in stitches.”

“My boys couldn’t even look at me. I’d been unsure about whether to let them see me like that, but they insisted they’d seen worse on YouTube. In fact, I trumped YouTube,” she continued.

“Seeing my own family, unable to look me in the eye, made it all real. Everyone just sat there trying not to cry.

“I wish I’d never had those sunbeds. I believe they are the reason for all of this. Doctors have asked if I ever burnt my ears as a child, but I don’t recall that happening, and neither does my mum.”

Post-surgery, something in Sarah – who believes it is important to be open, but positive, with her children about her battle – flipped and she became determined to educate others on sun safety, using her scar as an educational tool.

Still working in a school at the time, she spoke to children – especially young girls – about her experience.

Sarah and her family (PA Real Life/Collect)

Sarah and her family (PA Real Life/Collect)

“There’s a lot of pressure on young girls around looks, and for them to look a certain way,” she explained. “The media portray a tan as healthy, when in reality, it’s damaged skin. Whenever it was sunny, I’d make sure to remind people about using lotion and staying in the shade.”

Still juggling treatment with her tireless crusade to educate others, Sarah began an intensive course of radiotherapy in March 2017.

She added: “Nothing I’d been through so far was as bad as that. It was like having sun stroke that got a little worse every day.

“My mouth blistered, and all my taste buds burnt off. My throat blistered too, but I’d also be sick which felt agonising.”

She continued: “The exhaustion was something else. I thought, being a mum, I knew what being tired felt like – but this was like my entire body, apart from my mind, was asleep. I can’t tell you how relieved I was to ring that bell on the ward to mark my treatment being over.”

By August 2017, Sarah started to feel back to herself again, and was looking forward to rebuilding her life. But then, she was suddenly struck by “lightning bolt” headaches.

At first, she was told it was probably an ear infection, caused by the radiotherapy drying and damaging her skin but, unconvinced, she asked her cancer nurse to arrange some scans.

Tragically, at the end of November, an MRI scan detected a tumour in her brain – meaning her cancer was now stage four.

“After that news, I had to give up my driving license in case the tumour caused any seizures,” she said. “I found that loss of independence incredibly hard.

“I’ve been driving since I was 18 and all of a sudden I was robbed of all those little things, like being able to pick the kids up, or nip out to the shops. Now, I have to plan every single outing with so much precision.”

Meeting with a specialist, Sarah decided to go for gamma knife surgery – a pioneering radiation treatment, which uses a focused array of beams to treat brain lesions.

By the time the operation rolled round on 14 December 2017 though, the original tumour had trebled in size, and two more had sprung up.

Still, the procedure appeared to be a success, and doctors were confident they had removed all traces of the tumours.

Two months later, though, the “lightning bolt” headaches returned, and a scan revealed two new tumours had grown.

“That was hard to hear, but I was offered the gamma knife surgery again, and it’d been successful last time, so I thought, ‘At least it’s treatable,’” said Sarah.

“I was put on steroids to help me prepare for the surgery, but I had quite a bad reaction to them. I was so exhausted I could barely walk. I gained around 1.5st in two weeks with it all.”

During her recovery after the second bout of gamma knife surgery, Sarah reached out to the charity Melanoma UK, having previously discovered them through a Facebook support group.

Since then, they have been an invaluable source of emotional, practical and financial support to her in her hour of need.

“They’ve been a lifeline. They helped with things I hadn’t even considered before now,” she said. “Through one of their grants, I was able to get a scooter, which now makes it far easier for me to get around.”

Tragically, Sarah’s fight is far from over as, in April 2018 – the week before she was due to have a second session of immunotherapy – she discovered the cancer had spread to the lining of her brain, meaning her condition is now classed as advanced.

But, despite this, she is determined to stay positive, especially as her body is responding well to the chemotherapy she is currently having.

“My motto is cry tonight, fight tomorrow. And that’s what I’ll do,” she said.

Determined that her suffering won’t be in vain, Sarah has dedicated her time to working with Melanoma UK, backing their campaign to ban the commercial use of sunbeds in the UK.

With skin cancer rates soaring – as shown in a 2015 study by Cancer Research UK, which reported 15,906 new cases, and noted that 86 per cent were preventable – their message is more vital than ever.

A similar ban to the one being proposed was rolled out in Australia in 2013 in a bid to slash the skin cancer death rate there.

Sarah explained: “With the campaign, we aren’t trying to put people out of jobs – we’ll work with them to retrain them in spray tanning. But we don’t want people to die either.

“The amount of unregulated sunbed use is shocking. People can go on for as long as they like, with no warnings displayed. You see warnings on cigarette packets, on alcohol, even before gambling adverts – why aren’t there any in tanning salons?

“It’s hard knowing this disease can be preventable. Avoiding a sunbed can literally save your life. I don’t want anyone else going through this. I’m only 41, and here I am, praying I’ll see my kids grow up.”

She added: “Cancer doesn’t just affect the person is happening to. This has changed the lives of everyone I love. I’m the atom bomb in the centre of it all – but they’re all caught in the explosion.”

Dr Christian Aldridge, Consultant Dermatologist said: “It has been well established previously that natural ultraviolet radiation (UVR) can cause skin cancer. There is now a large body of robust scientific evidence that clearly demonstrates that sunbeds increase your risk of melanoma.

“These findings are also backed up by IARC, the International Agency for Research on Cancer, who state that sunbeds provide no positive health benefits. The risks are greater for younger people as using sunbeds for the first time before the age of 35 increases your risk of melanoma by 60 per cent”

To sign the petition, visit petition.parliament.uk/petitions/223903 and to read more information about melanoma visit www.melanomauk.org.uk

DES MOINES, Iowa (AP) — Stung by paying billions of dollars for settlements and trials, chemical giant Bayer has been lobbying lawmakers in three states to pass bills providing it a legal shield from lawsuits that claim its popular weedkiller Roundup causes cancer.

Nearly identical bills introduced in Iowa, Missouri and Idaho this year — with wording supplied by Bayer — would protect pesticide companies from claims they failed to warn that their product causes cancer, if their labels otherwise complied with the U.S. Environmental Protection Agency’s regulations.

But legal experts warn the legislation could have broader consequences — extending to any product liability claim or, in Iowa’s case, providing immunity from lawsuits of any kind. Critics say it could spread nationwide.

"It’s just not good government to give a company immunity for things that they’re not telling their consumers,” said Matt Clement, a Jefferson City, Missouri, attorney who represents people suing Bayer. “If they’re successful in getting this passed in Missouri, I think they’ll be trying to do this all over the country.”

Bayer described the legislation as one strategy to address the “headwinds” it faces. About 167,000 legal claims against Bayer assert Roundup causes a cancer called non-Hodgkin’s lymphoma, which Bayer disputes. The company has won some cases, settled many others but also has suffered several losses in which juries awarded huge initial judgments. It has paid about $10 billion while thousands of claims linger in court.

Though some studies associate Roundup's key ingredient with cancer, the EPA has regularly concluded it is not likely to be carcinogenic to humans when used as directed.

The costs of “defending a safe, approved product” are unsustainable, said Jess Christiansen, head of communications for Bayer's crop science division.

The legislation was introduced in targeted states pivotal to Bayer's Roundup operations and is at a different stage in each. It passed the Iowa Senate, is awaiting debate in the Missouri House and was defeated in Idaho, where this year's legislative session ended.

Farmers overwhelmingly rely on Roundup, which was introduced 50 years ago as a more efficient way to control weeds and reduce tilling and soil erosion. For crops like corn, soybeans and cotton, it’s designed to work with genetically modified seeds that resist Roundup’s deadly effect.

Missouri state Rep. Dane Diehl, a farmer who worked with Bayer to sponsor the legislation, cited concerns that costly lawsuits could force Bayer to pull Roundup from the U.S. market, leaving farmers to depend on alternative chemicals from China.

“This product, ultimately, is a tool that we need," said Diehl, a Republican.

Iowa Gov. Kim Reynolds, a Republican, said in an email the legislation maintains the integrity of the regulatory process and, without it, “Iowa risks losing hundreds of jobs” in Muscatine, an eastern Iowa city where Roundup is mostly produced.

The Associated Press is seeking public records on Bayer’s communications with governor's offices in Iowa, Missouri and Idaho.

Bayer, like other companies, hires lobbyists in states to advocate for its interests. The company backs this legislation in the states where “we have a big, direct economic impact,” Christiansen said.

Roundup’s key ingredient, glyphosate, is derived from phosphate mined in Idaho. And St. Louis is the headquarters of its North America crop science division, acquired in its 2018 purchase of Monsanto. Because of that, many of the lawsuits are filed in Missouri.

The five lobbyists registered for Bayer in Iowa and three in Idaho is largely consistent with recent years, but the number working in Missouri this year ballooned from four to nine. Lobbyist expenditures exceeded $8,000 in Idaho this year; similar information was not available in Iowa or Missouri.

Led by Bayer, a coalition of agricultural organizations called Modern Ag Alliance also is spending tens of thousands of dollars on radio and print advertisements claiming that trial lawyers and litigation threaten the availability of glyphosate.

On its website, the group asserts that at risk are 500 jobs connected to glyphosate production in Iowa, and 800 jobs in Idaho.

Bayer stopped short of threatening closures. The Iowa facilities, including in Muscatine, “are very critical facilities to our business, so we'll remain at some sort of support level,” Christiansen said.

At issue in the lawsuits and legislation is how Bayer – and any other pesticide company — communicates with consumers about the safety of its products.

Companies are required to register products with the EPA, which evaluates — and then reevaluates every 15 years — a pesticide and its label. The EPA reiterated in 2020 that glyphosate used as directed posed no health risks to humans. But a federal appeals court panel in 2022 ruled that decision “was not supported by substantial evidence” and ordered the EPA to review further.

The debate over glyphosate escalated when a 2015 report by the International Agency for Research on Cancer, part of the World Health Organization, said it's “probably carcinogenic to humans" based on “limited” evidence of cancer in people and “sufficient” evidence in study animals.

Based on that international report, California sought to add a cancer warning label to products containing glyphosate. But a federal appeals court ruled against California last November, concluding such a warning wasn't factual.

Christiansen emphasized that many regulatory agencies worldwide agree with the EPA and insisted Bayer has to stick to EPA labeling to ensure it isn't providing false or misleading information. She added that the company is transparent in the information it does provide.

Critics of the legislation aren't convinced, citing examples such as opioids and asbestos that had been deemed safe for use as directed — until they weren't.

There also are concerns that the legislation could stifle any product liability claim since most rely on the argument that a company failed to warn, said Andrew Mertens, executive director of the Iowa Association for Justice, an organization for trial lawyers.

Jonathan Cardi, a product liability and torts expert at Wake Forest University School of Law, also said a strict reading of the Iowa legislation extends beyond liability claims, and “the way it’s drafted makes it interpretable to mean nobody could bring any suit.”

In lobbying lawmakers and in speaking with the AP, Bayer representatives disputed that the legislation would cut off other legal actions. Several legal experts said the legislation is unlikely to affect the 18,000 lawsuits already pending in Missouri’s capital of Jefferson City, and wouldn’t prevent claims in states that don’t adopt similar legislation.

In Idaho, the Republican-led Senate narrowly defeated the bill amid concerns about relying on federal agencies' safety standards and limiting the ability of harmed individuals to sue.

John Gilbert, who farms in Iowa Falls, Iowa, with limited use of Roundup, called Republicans hypocritical for attempting to protect corporate interests after campaigning on standing up for Iowans.

The bill “invites a lot of reckless disregard," said Gilbert, who is on the board for the Iowa Farmers Union. “No amount of perfume’s gonna make it anything but a skunk."

Lieb reported from Jefferson City, Missouri.

FILE - Soybeans are seen in a field on a farm, Friday, Sept. 2, 2016, in Iowa. The maker of a popular weedkiller is turning to lawmakers in key states to try to squelch legal claims that it failed to warn about cancer risks. (AP Photo/Charlie Neibergall, File)

FILE - Soybeans are seen in a field on a farm, Friday, Sept. 2, 2016, in Iowa. The maker of a popular weedkiller is turning to lawmakers in key states to try to squelch legal claims that it failed to warn about cancer risks. (AP Photo/Charlie Neibergall, File)

FILE - The Bayer AG corporate logo is displayed on a building of the German drug and chemicals company in Berlin, Monday, May 23, 2016. Bayer, the maker of a popular weedkiller, is turning to lawmakers in key states to try to squelch legal claims that it failed to warn about cancer risks. Bayer disputes such claims but already has paid about $10 billion to resolve them. (AP Photo/Markus Schreiber, File)

FILE - The Bayer AG corporate logo is displayed on a building of the German drug and chemicals company in Berlin, Monday, May 23, 2016. Bayer, the maker of a popular weedkiller, is turning to lawmakers in key states to try to squelch legal claims that it failed to warn about cancer risks. Bayer disputes such claims but already has paid about $10 billion to resolve them. (AP Photo/Markus Schreiber, File)

FILE - Phosphate ore is dug up and transported from Monsanto Company's South Rasmussen Mine site near Soda Springs, Idaho, July 16, 2009. Bayer acquired Monsanto in 2018. Bayer, the maker of a popular weedkiller, is turning to lawmakers in key states to try to squelch legal claims that it failed to warn about cancer risks. The company disputes such claims. A key ingredient of the weedkiller, glyphosate, is derived from phosphate mined in Idaho. (Bill Schaefer/The Idaho State Journal via AP, File)

FILE - Phosphate ore is dug up and transported from Monsanto Company's South Rasmussen Mine site near Soda Springs, Idaho, July 16, 2009. Bayer acquired Monsanto in 2018. Bayer, the maker of a popular weedkiller, is turning to lawmakers in key states to try to squelch legal claims that it failed to warn about cancer risks. The company disputes such claims. A key ingredient of the weedkiller, glyphosate, is derived from phosphate mined in Idaho. (Bill Schaefer/The Idaho State Journal via AP, File)

FILE - Containers of Roundup are displayed on a store shelf in San Francisco, Feb. 24, 2019. Thousands of legal claims against drug and chemicals company Bayer assert Roundup causes a cancer called non-Hodgkin’s lymphoma, which Bayer disputes. (AP Photo/Haven Daley, File)

FILE - Containers of Roundup are displayed on a store shelf in San Francisco, Feb. 24, 2019. Thousands of legal claims against drug and chemicals company Bayer assert Roundup causes a cancer called non-Hodgkin’s lymphoma, which Bayer disputes. (AP Photo/Haven Daley, File)

FILE - A soybean field is sprayed in Iowa, July 11, 2013. The maker of a popular weedkiller is turning to lawmakers in key states to try to squelch legal claims that it failed to warn about cancer risks. (AP Photo/Charlie Neibergall, File)

FILE - A soybean field is sprayed in Iowa, July 11, 2013. The maker of a popular weedkiller is turning to lawmakers in key states to try to squelch legal claims that it failed to warn about cancer risks. (AP Photo/Charlie Neibergall, File)

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