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Parents use up all savings to save baby girl who suffers from rare disease and weighs mere 6.3 lb

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Parents use up all savings to save baby girl who suffers from rare disease and weighs mere 6.3 lb
News

News

Parents use up all savings to save baby girl who suffers from rare disease and weighs mere 6.3 lb

2017-11-21 15:15 Last Updated At:15:15

Identified as Feifei, the baby girl from Anhui, was diagnosed with a disorder named Costello syndrome. She was born 8.25 lb but gradually turned emaciated. Her parents residing in a rural village borrowed money from relatives and friends, and have spent nearly RMB200,000 to date.

After reading a news story about a baby boy recovering from the same rare disease, they brought her to the University of Hong Kong-Shenzhen Hospital, where the boy was treated. Feifei was in poor condition at first, but now her weight has increased to 7.3 lb with the treatment plan. 

Many people said they should give up, Feifei’s mum recalls. But she emphasized that it is her maternal responsibility to take good care of Feifei. To save money, the underprivileged parents have brought their pillows and blankets, and sleep on the floor of the hospital. 

BAMAKO, Mali (AP) — A humanitarian crisis is worsening in northeastern Mali where armed groups linked to Islamic State have besieged major towns leaving residents including some 80,000 children vulnerable to malnutrition, locals and an aid group warned Wednesday.

The town of Ménaka has been under siege for four months, driving up the prices of food. Other essential goods like medication are increasingly hard to find, residents and aid groups say.

“The humanitarian situation is catastrophic, with displaced people going from house to house asking for food for their families. Children are threatened with starvation,” Wani Ould Hamadi, deputy mayor of the town of Ménaka, told the Associated Press.

Mali, along with its neighbors Burkina Faso and Niger, has for over a decade battled an insurgency fought by armed groups, including some allied with al-Qaida and the Islamic State group. Following military coups in all three nations in recent years, the ruling juntas have expelled French forces and turned to Russia’s mercenary units for security assistance instead.

Col. Assimi Goita, who took charge in Mali after a second coup in 2021, promised to beat back the armed groups, but the United Nations and other analysts say the government has rapidly lost ground.

The aid group Save the Children said some 80,000 children were trapped inside the town of Ménaka facing malnutrition and disease, and many were unaccompanied having fled violence elsewhere..

“Children in Menaka are trapped in a living nightmare. Let us be clear: unless the blockade is lifted , starvation and disease will led to deaths,” Siaka Ouattara, the country director, said in a statement.

Ayouba Ag Nadroun, a man who fled to Ménaka to escape violence in other parts of the country said he was unable to provide for his extended family of some 15 members, including many women and children, and surviving on scarce handouts of aid. “I have no job, how can I help them?” he told the AP.

“The blockades subject villagers to violence, hunger and fear and have long been a tactic used by these jihadist groups to punish communities for their perceived support of the government,” said Sahel analyst Corinne Dufka adding that they had often succeeded in pressuring the communities to sign non-aggression accords with the groups.

Mali's leader, Goita, has promised to return the country to democracy in early 2024. But in September, the junta canceled elections scheduled for February 2024 indefinitely, citing the need for further technical preparations.

Last month, his ruling junta ordered all political activities to stop, and the following day ordered the media to stop reporting on political activities.

Armed groups besieging towns in northeastern Mali driving residents, many children, to hunger

Armed groups besieging towns in northeastern Mali driving residents, many children, to hunger

Armed groups besieging towns in northeastern Mali driving residents, many children, to hunger

Armed groups besieging towns in northeastern Mali driving residents, many children, to hunger

In this 2018 photograph released by Mouvement pour le Salut de l'Azawad, Islamic State group commander Abu Huzeifa, known by the alias Higgo, poses in uniform. Mali's army said in a statement late Monday, April 29, 2024, that Huzeifa was killed by Malian state forces. The United States had announced a reward of up to $5 million reward for anyone providing information about him. Huzeifa was believed to have helped carry out an attack in 2017 on U.S. and Nigerien forces in Tongo Tongo, Niger, which led to the deaths of four Americans and four Nigerien soldiers. (AP Photo)

In this 2018 photograph released by Mouvement pour le Salut de l'Azawad, Islamic State group commander Abu Huzeifa, known by the alias Higgo, poses in uniform. Mali's army said in a statement late Monday, April 29, 2024, that Huzeifa was killed by Malian state forces. The United States had announced a reward of up to $5 million reward for anyone providing information about him. Huzeifa was believed to have helped carry out an attack in 2017 on U.S. and Nigerien forces in Tongo Tongo, Niger, which led to the deaths of four Americans and four Nigerien soldiers. (AP Photo)

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